GROW Community


cerebral palsy

Renovating Our Home and Our Lives for Cerebral Palsy

Until we began to carve out our home to make it accessible to our son with cerebral palsy, I did not know I could plan his path to freedom.

Jamie Sumner

How Having a Child with Disability Fosters Empathy

People seem to see my child’s disability first, him as a human being second. I have a desire to engender understanding on behalf of my child.

Alethea Mshar

Taking the Stress Out of Changing Your Child’s G-Tube

Performing any medical procedure on your child can be stressful for all concerned. Swapping out your child's g-tube for a replacement is no exception.

Amy Long Carrera, MS, RD, CNSC, CWCMS

Target Redefines Beauty for Kids with Special Needs

We hadn’t even made it to the Target toy section when he laughed and cupped his hands together to sign “more.” He was looking at an ad of a boy in a walker.

Jamie Sumner

Caregiver Contest Finalist Gloria: Soothing Medically-Fragile Children

Gloria G. is from California, and was one of forty finalists chosen out of the over 1,000 entries to...

Aimee Sharp
special needs mom

9 Ways To Celebrate The Special Needs Mom in Your Life

A special needs mom can feel invisible and exhausted -- making a special day set aside to appreciate her especially meaningful.

Alethea Mshar

Caregiving as a Parent of Special Needs Children

This taps into the fear of many caregiving parents: what if something happens to me without time to prepare? I'm finding ways to share the responsibility.

Alethea Mshar
special needs parents

Parents of Children with Special Needs: Missing the Milestone Moment

Special needs parents are perhaps the best at feeling guilt when we miss a milestone moment for our child. But it doesn't have to be that way.

Jamie Sumner
disability emoji

New Disability Emoji: Let This Be Just the Beginning

If the new disability emoji is the modern world’s equivalent to hieroglyphics, then I'm ready to see my son’s life adequately expressed.

Jamie Sumner
genetic testing

Why I Said “No” to More Genetic Testing for My Child

More genetic testing? No thanks, I said. We did not need new paths to wander down. We needed to help our son navigate the one he was already on.

Jamie Sumner
Pediatric Tube Feeding Guide
2017 Caregiver Contest
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