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Illinois Spina Bifida Association

Connecting Through Spina Bifida: When Wendy Met Zaela

Original article published on www.i-sba.org | April 30, 2019 It was a powerful moment when this...

Brooke Phillips, CWCMS
sunscreen

After Being Diagnosed with Skin Cancer, I’m Doing Everything I Can to Prevent it from Happening Again

Last month, I was sitting in my dermatologist’s office, kicking my heels against the exam chair...

Jamie Sumner
kidney stone prevention

5 Tips for Preventing Kidney Stones

Kidney stones are extremely common, even affecting young children and teens. Kidney stones are small, pebble-like deposits composed of minerals and salts.

Cassandra Bursma, RD
Give and Take

The Give and Take of Helping a Friend

Whether I want to swallow my pride and accept, or even ask for help is a mute point anyway. I have a family to consider...

Alethea Mshar
PTSD

Coping Strategies for the Parent Struggling with PTSD

You may find your anxiety is being triggered by the day’s events, or what you still need to...

Dr. Liz Matheis

Happy Mother’s Day to the Grandma of My Special Kid

So on this Mother’s Day, I would like to remind you of what I hope you already know: I am so grateful for you. Thank you for raising me to be uniquely suited to take care of my special boy. I mother the way I do because of you.

Jamie Sumner
label

Label or Not Here We Come

Labels can get a bad rap when they’re applied to people. Ideally, we’d have a world where everyone is accepted as they are and neurodiversity and disabilities need no explanation.

Alethea Mshar

You Are NOT Alone – Parents of Children with Special Needs Suffering from PTSD

Parenting a child with special needs is a tough job. Take the time to check in with yourself and take comfort in knowing you are not alone in this journey.

Dr. Liz Matheis
Swim Lessons

Here’s Why My Kids Haven’t Had Swim Lessons Yet

Most days, the viewing area of my twins’ gymnastic’s class is fairly tame. The parents sit,...

Jamie Sumner
self-cath

Navigating Childhood and Learning How to Self-Cath

If your child requires self-catheterization at school and is developmentally ready, it can be helpful for him or her to begin learning at an early age, possibly even as early as kindergarten.

Sarah Herrera