Tube feeding is a life-sustaining means of getting the nutrition you need to stay healthy and thrive. Being on tube feeding may take some time to get used to. It’s important to have the support of family, friends, healthcare professionals and support groups.
Resources and Support Groups
Feeding Tube Awareness Foundation works to raise positive awareness of tube feeding and to help parents obtain the practical knowledge and support they need. They also started Feeding Tube Awareness Week, dedicated to increasing visibility and acceptance of tube feeding in our communities. It takes place annually during the second week of February. Their Facebook page is the largest online support group for tube feeding in the world.
The Oley Foundation provides support to home tube-fed adults and children in the form of newsletters, a video library, an online community forum, regional support groups, an annual consumer conference and more.
Feeding Matters hosts a parent-to-parent online forum to address questions and concerns about pediatric feeding disorders and tube feeding.
Tube Fed Kids is run by parents of tube-fed children. In the forum, parents share experiences and support each other during their tube feeding journey.
These groups run programs that connect people who need supplies with people who would like to donate supplies. Often, the person in need pays for shipping.