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Ileostomy Output | Ask Laura

Laura Cox
Ostomy Lifestyle Specialist | Shield HealthCare
12/28/15  3:16 PM PST
Ileostomy Output

Want to know more about how to slow ileostomy output while sleeping?

Q: Hello Laura,

My friend had her surgery four weeks ago to form an ileostomy and she is really in a bind. I know the ileostomy output cannot be controlled, but she is having to empty her pouch starting at 2:00 am, then every two hours throughout the night. She has not had a complete night of sleep since she has to empty her bag every two hours. Is there anything you can suggest? Is there a bigger bag?

Thank you for your consideration,
Consuelo

A: Hi Consuelo,

I’m sorry to hear your friend has been having trouble sleeping due to her ileostomy output.

For her sleeping issue, I would have her hydrate and eat very well up until about two or three hours before she goes to bed. Then, for about two hours before before bed I would suggest that she does not eat or drink anything. This will definitely slow down her bowel movements throughout the night. Also, she can ask her doctor if she can take an anti-diarrheal (to further slowdown her bowels). As her body readjusts to her new anatomy, hopefully her output will slow down. The first four or five months after surgery I had to get up three times a night, now I get up only once per night. Your body actually learns to adjust!

Also, there are bigger pouches available. They are called “night drainage bags” and are much larger than a normal sized pouch. Here’s one example from Coloplast.

You can also watch my video with tips about sleeping well when you have a stoma here.

I hope everything goes well for your friend and that you’re both happy and healthy!

Laura

Serving Medicare Ostomates Nationwide
My 89-year-old mother loves to swim but she has found that the pouch fills with water when she gets into the pool. What can we do to fix this?
Cathy
We recently had someone reach out to our Facebook community with a similar question, and several of our OstomyLife community members responded with their own advice.
 
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5 Comments

  1. Maddie
    Posted December 29, 2015 at 2:29 am PDT

    Hi Laura,
    I’m a UC patient and second time round with a temporary ileostomy after having complications following surgery (6 weeks ago) to hitch up my prolapsing j pouch (I’m due to be reconnected Feb/Mar’16).
    I’m finally feeling good enough to exercise (& have my surgeon’s okay) and was wondering what type of exercises I could do, especially to strengthen my abs and back as I’m a little scared of causing more problems.
    Thanks heaps,
    Maddie

  2. Posted February 9, 2016 at 10:48 am PDT

    Hi Maddie, great question! Here is a link to an article I wrote about exercising with an ostomy http://www.shieldhealthcare.com/community/ostomylife/2015/03/10/how-to-exercise-with-an-ostomy/

    I hope you’re happy and healthy!

  3. Judith
    Posted January 27, 2016 at 12:06 pm PDT

    I had surgery in Sept. And things went ok. Now I am having a lot of leaks ans raw skin around the stoma. I am not sure what changed. I think it may be that I started Chemo. It seems to be worse after Chemo. I go every three weeks. Have you heard Of this before and any suggestions on how to handle it?

  4. Posted February 9, 2016 at 10:18 am PDT

    Hi Judith,
    I’m sorry to hear you’re having issues with leakage. I have heard the Chemo can change the chemistry of your skin and that some products that used to work well for you may not work as well now. I would suggest you make an appointment with your WOC Nurse and discuss what other products you can try to see what works best with your skin while on chemotherapy. You can order samples via the different manufacturers if you’d like to experiment. Has your stoma changed size or appearance at all?
    I hope this message finds you well!

  5. Bob Hamburg
    Posted March 2, 2016 at 5:23 pm PDT

    To help slow output from an oleo stony try eating a banana an hour or so before bed.

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