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Spinal Cord Injury – Helpful Links and Resources

Nutrition and Dietetics Student | Shield HealthCare
09/08/17  12:14 PM PST
spinal cord injury resources

Spinal Cord Injury Resources – Helpful Links for Support

Individuals with spinal cord injury (SCI) as well as family, friends and caregivers need support and resources to help them cope with a diagnosis, complications, and navigating everyday life. We hope these resources are helpful to you and your family.

Basics

  • Christopher and Dana Reeve Foundation
    • Dedicated to curing spinal cord injury by funding innovative research, and improving the quality of life for people living with paralysis through grants, information and advocacy.
  • SpinalCord.com
    • Information on diagnosis, treatment, support, financial resources and legal options for brain and spinal cord injuries.
  • SPINALpedia
    • Social mentoring network and video archive that allows the spinal cord injury community to motivate each other with the knowledge and triumphs gained from individual experiences.
  • Wings for Life 
    • Latest research news and helpful links for those affected by SCI.

Complications of Spinal Cord Injury

Driving and Travel

Family and Caregivers

  • Family Caregiver Alliance
    • Serves as a public voice for caregivers, shines light on the challenges caregivers face daily and champions their cause through education, services, and advocacy.
  • United Spinal Association
    • A comprehensive list of resources when preparing to be a caregiver, how to be a caregiver, and where to locate caregivers when needed.

Legal Assistance

  • SpinalCord.com
    • Resource center and legal help for brain and spinal cord injuries.

Nutrition and Spinal Cord Injury

Non-traumatic Spinal Cord Injuries

Physical Therapy and Rehabilitation

Sports and Physical Activity

  • American Association of Adapted Sports Programs
    • Dedicated to developing adapted interscholastic sport programs in partnership with national, state, and local educational agencies, affording students with physical disabilities access to competitive sports.
  • Disabled Sports USA
    • Provides opportunities for individuals with disabilities to develop independence, confidence, and fitness through participation in community sports, recreation and educational programs.
  • United Spinal Association
    • Comprehensive list of resources for exercise with spinal cord injury and specific adaptive sports, such as basketball, weightlifting, quad rugby and more.

Support Groups

  • Wheel:Life
    • Resources that help you explore employment and educational options, research and find medical equipment, connect with support groups and enjoy a full and happy life.

Other Resources

  • Nurse Advice Line
    • Experienced nurse advice for non-emergent medical questions and education materials.
  • Paralyzed Veterans of America
    • Advocates for quality healthcare, research and education, benefits and civil rights for veterans of the armed forces.

 

Articles on Living with Spinal Cord Injury:

Webinar Video: Life After Spinal Cord Injury

Injury Anniversary

Video: Air Travel with a Spinal Cord Injury

Preventing Urinary Tract Infections in Seniors Webinar
I have progressive MS and I find it hard sometimes to have a positive attitude. How do you reach out to others?
Mary
The psychological roller coaster of life can be dramatically amplified by a physical condition like MS or spinal cord injury - no doubt! ...

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