If your child has anxiety, school can be a daily struggle. Your child may resist getting out of bed, express physical complaints like stomachaches or headaches before bed or in the morning, or struggle to make friends. Some subjects may feel especially challenging, and the noise and activity of the school environment can be overwhelming.… Continue reading Supporting an Anxious Child in School: What You Can Do

Disability Representation on the Big Screen Lights! Camera! Action! This holiday season, the anticipated release of Wicked is breaking down barriers of genre, race and now accessibility. Marissa Bode is making history by authentically using a wheelchair to play the character, Nessarose, the younger sister of the wicked witch, Elphaba. Marissa Bode began using a… Continue reading Disability In Hollywood

By organizing your tube-feeding equipment, you can better keep track of your inventory of supplies on hand, and make the tube-feeding process more efficient in the home. We like to call this your 'Enteral Pantry'.

1 in 100 Americans live with the invisible symptoms of Crohn’s disease or ulcerative colitis, collectively known as inflammatory bowel disease (IBD). IBD is a broad term that describes conditions characterized by chronic inflammation of the gastrointestinal tract. Although Crohn’s disease and ulcerative colitis are not the only types of inflammatory bowel diseases, they are… Continue reading Trust Your Gut – When to Speak to a Doctor About Your Bowels

The United States has made almost no progress in closing racial health disparities despite promises, research shows. The government, some critics argue, is often the underlying culprit. Kaiser Family Foundation (KFF) Health News undertook a yearlong examination of how government decisions undermine Black health — reviewing court and inspection records and government reports, and interviewing… Continue reading Watch: Why the US Has Made Little Progress Improving Black Americans’ Health

Whether it feels like it or not at the moment, cold weather is coming. We are in the flux of late fall when you’ll get a few sunny afternoons, but the overall days are getting shorter and chillier. With each minute lost to twilight, I think of Charlie, my son who uses a wheelchair, who… Continue reading Cold Weather Gear for Wheelchair-Users

Holiday vacations are weird and stressful, but also maybe a little wonderful. You have to run towards the wonderful part head-on so you don’t miss it.

U.S. Forest Service Trail Accessibility Guidelines (FSTAG) Over the summer my family and I cycled across the United States, 2,448 miles along America’s main street, Route 66— Raising awareness and funds for disability. While enroute, we also discovered many accessible trails for our leisure. I was pleasantly surprised at how easily they were accessed by… Continue reading Accessible Trails for People with Disabilities

Breastfeeding nutrition recommendations are more relaxed than those you followed in the nine months before your baby was born- and this is welcome news to many mothers!

My son Charlie recently underwent hip reconstruction surgery. If you had asked me what I believed to be the hardest surgery Charlie would have, I would have said the tracheotomy while he was in the NICU. Or perhaps later, the tongue reconstruction, which involved cutting a pie-wedge slice out of his tongue and suturing the… Continue reading When the Answer Isn’t Clear