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complex child

Learning to Trust My Gut as the Parent of a Complex Child

As parent and primary caregiver of a complex child, you know your child best. Trust your gut and question the professionals when you need to.

Alethea Mshar
support system

Special Needs Parenting: When Your Support System Fails

As parents of a child with special needs, we all know it. That fear we all fear when our support system fails and we are parenting alone.

Jamie Sumner

Instead of A Balance Beam, We Got A Teeter Totter

For my family, balance is not a reasonable aspiration. Instead I’ll seek to triumph in the highs and rebound from the lows of this teeter totter life.

Alethea Mshar
the birds and the bees

How to Talk to Your Special Needs Child about the Birds and the Bees

The birds and the bees …oh geez, do we really have to go there? Yes, we do. Our children with special needs are still kids who are hungry for information.

Dr. Liz Matheis
special needs

The One Word Special Needs Parents Need to Hear More Often

As special needs parents, advocate, independence, and empathy are three vital words to our children’s lives. But I would like to add one more.

Jamie Sumner
social story

Special Needs Parenting: What is A Social Story and How Can I Get One?

A good social story helps us teach our two sons with Down syndrome many of the social nuances that don’t come easily to them.

Alethea Mshar
special needs child

How to Talk to Your Special Needs Child about Catastrophic Events

Depending on the age and disability of your special need child, you may have to limit what you share about catastrophic events.

Dr. Liz Matheis
magic eight ball

Weaning Myself off the Magic Eight Ball

As a special needs parent, I’ve had to train myself to put down that Magic Eight Ball. I’ve had to stop asking all the “what-ifs” over and over again.

Jamie Sumner
special needs

How to Talk to Siblings of Children with Special Needs

My daughter is the only non-disabled child in our family. Her needs may be different from that of her special needs siblings, but they are still very real.

Alethea Mshar

Movement When Your Child has a Physical Disability

I needed movement for stress relief more than ever when my son was born with a physical disability. But how could I go for a run with a child with a trach?

Jamie Sumner
Pediatric Tube Feeding Guide
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