These are the little bubbles of laughter and light we need when life is the hardest. That’s the thing about life - it usually sends you something when...

If your child has recently been diagnosed with Fragile X, it can be overwhelming and scary. Fragile X can present a unique set of challenges for individuals and their families.

For Charlie who uses a wheelchair and is mostly nonverbal, YouTube is his gateway to the world. It opens doors to other adventures...

My son Charlie has officially outgrown conventional diapers. He’s twelve and slim. The next size up requires a doctor’s order...

What Should I Say? How Much Should I Say? Young children and teenagers are curious creatures. They hear and see things that they don’t always understand. They pick up on the emotions around them and can feel overwhelmed or confused.  The natural next step is for a child or teen to approach their parent. As… Continue reading Talking to Your Children About Current Events

Mother’s Day is complicated for many reasons. For those of us who spent years trying to conceive, we remember that day as a celebration for what felt like the rest of the world and absolute isolation for us. For those of us who have lost a child, this day is full of mourning. For those… Continue reading When Mother’s Day is Complicated

Adolescence is a time of immense physical and emotional growth, and of wanting independence. A teen with special needs is no different...

I Think my Child is Dyslexic – Now What? First things first: if you suspect your child has dyslexia, consult with a professional with specialized knowledge in language development to request an assessment. A speech-language pathologist who is certified by the American Speech, Language, and Hearing Association (ASHA), and who has training in reading disorders,… Continue reading Dyslexia Assessment: A Parent Guide

Gym class has always been a bit of a sore spot for me. Sure, I would lace up my Keds and hike up my spandex biking shorts from the Limited Too and get out there with the rest of them. But when it came to group sports, I was never picked first, or last, but… Continue reading Five Wheelchair-Accessible Games for Gym Class

I am not the best at going to the doctor. I’m great about it with my kids. If there is vomiting, a high fever, discharge of any color, then we are there with insurance card in hand and masks on. But when it comes to me, let’s just say I’m more…wait and see. There is… Continue reading When the Caregiver Needs Medical Care