Spasticity & Spasms: Part 2 – How I Manage My Possessed Body

Aaron Baker
Spinal Cord Injury Lifestyle Specialist | Shield HealthCare
02/14/17  2:44 PM PST
Spastic Paralysis Spinal Cord Injury

You can find Part 1 – Insight Into My Spastic Paralysis here.

In management, knowledge is power

Managing spasticity and spasms is a balance between maintaining their usefulness and minimizing the negative aspects within the context of your lifestyle. As I mentioned in the first part of this article, I use this condition for my benefit and choose to recognize their intrinsic value. The key to any long-term management plan is the need for movement or stretching, and the ongoing management and understanding of trigger factors. It is important to keep muscles, ligaments and joints as flexible as possible. This can be done through stretching, active movement (exercise) or passive movement (where the body is moved by an exercise specialist or automated exercise machine).

Not all spasticity is created equal

I know quite a few people living with a neurological disorder who, despite their proactive approach to body management, still suffer torturous ill-affects of uncontrollable spasms. Remember from part one, the brain/body connection is the source for the miscommunication and responsible for the erratic muscle behavior, but a thorough self-analysis may help deduce down the possible triggers that perpetuate the mixed signals. Personally, it is a matter of leaving no stone unturned when determining why I may have increased spasticity. Time and experience definitely helps me solve and understand my problem sooner than later, but my daily method of management is a solid set of ten fundamentals I build my life upon without medication.

So how do I manage my possessed body?

  1. Exercise – I try to consistently move my arms, legs, feet and hands through their full range of motion (to the best of my ability). This keeps my mind/muscle connection intact and, in essence, communicating.
  1. Active Stretching – Yoga, pilates and/or low intensity full-body cardio machines like the NuStep help to circulate my blood, warm my body and stretch my muscles and connective tissues.
  1. Passive/Static Stretching – I either use a stretch rope on my own, or the assistance of an exercise specialist to gently move my limbs through their full, pain free, range of motion. If I don’t stretch, I predispose to my limbs to becoming fixed in one position and that is known as a contracture.
  1. Posture – When I sit or lay, I am motionless like stone, my body movements shut off the moment I stop thinking about movement. Aligning my posture while standing, seated, or laying is paramount for length-tension relationships between muscles, connective tissue and bone. Furthermore, correct postural alignment helps prevent improper weight distribution (a precursor to pressure injuries) and a significant trigger.
  1. Aquatics – The buoyant, relaxing effects of water have a tremendous impact on my muscle tone and spasticity. Either in a warm swimming pool or hot jacuzzi, I experience a dramatic reduction of tension.
  2. Nutrition – Believe it or not, certain gaseous foods like broccoli, cauliflower, legumes and heavy read meat will cause me severe bloating. My gut then sends distress signals to my brain resulting in increased spasticity.
  1. Hydration – I am constantly on the verge of dehydration, I call it strategically dehydrated (dangerous and not recommended). I present this way as a form of bladder control, to keep from urinating every 20 minutes. However, by living this way I am more inclined to experience an increase in spasticity. I imagine my muscles like a dry sponge on the kitchen sink, stiff and inflexible (hard to wash dishes with). But when I add the right amount of movement and fluid I can experience a “sweet spot” of hydration and flexibility, allowing me spastic relief. I have found what works for me, but please drink the amount of fluids as directed by your healthcare professional.
  1. Rest – Over excursion and/or under recovery are underrated triggers for spasticity. I have discovered this for myself the hard way, by constantly pushing my body to its limit. I unknowing over-did-it, time and time again, suffering a rebellious body, wracked with spasms. Bottom line: rest well!
  1. Analysis – I take inventory of my day, recounting consistencies, anomalies and anything that may have contributed to my current spastic condition. Regular reflection helps me better understand my triggers and hopefully prevent future issues.
  1. Self Awareness – This encapsulates the other nine fundamentals by which I manage my spasticity. I continuously learn about my body by sensitively listening and paying attention as I navigate through life. This, above all is my way of connecting to my disconnected-self.

At the end of the day my body can be an enigma. For any number of reasons the mixed signals between my body and brain will cause shakes, spasms, squirms and squeals. All I can do is to not fight against myself, but value the movement and use the experience for my improvement.

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  1. Thank you for sharing your personal experience with spasticity. I have an incomplete spinal cord injury, with most of my disability in my left leg. I can walk, but it’s with a huge limp, frequent falling and a lot of effort. Without spasticity, I can function almost normally. And, like you, I’ve been trying to figure out why I have good spasticity days and bad ones. I’m currently experimenting with electrolytes. It’s hard to find info on spasticity as it relates to incomplete injuries, so I’m thankful for the info you shared!

    1. Thank you for sharing your experience as well, Diana! This injury can be quite an enigma. My spasticity fluctuates depending upon my activity, fatigue, hydration, nutrition and stress – not to mention, if I am suffering an additional injury or illness. My continuous challenge is listening and analyzing what signals my body is sending. As time goes on, I become better at understanding the cause and effect of spasticity fluctuation. I hope the electrolytes work for you – please share your results. Best in Health! -Aaron

  2. Thanks for sharing! I deal with A LOT of spasms, and I hope that some of your information will help reduce that. One note to you that I hope might help with the constant urination. I was dealing with the same problem, and nothing was working for me except the same method you were using which was basically not drinking much. I visited my Urologist, and after a few failed attempts we hit on a solution. I received my first set of Botox shots to my bladder, and I immediately saw improvement in two ways; 1) I can go several hours without needing to urinate even while drinking copious amounts of fluids and 2) I regained the sensation or the urge to urinate which I hadn’t had since my accident that left me a para. Just a thought, hope it helps. If you have any questions let me know.

  3. Hello,I also suffer from SCI Spasticity (C4-Asia D)
    I have spastic hands and have received Botox in forearms,it has helped loosen my hands, in turn we exercised the hands making them stronger. Hopefully a few rounds of this will strengthen enough to overtake Spasticity ..

  4. Thank you for sharing this. My SCI occurred 4 months ago at C5 and C6 incomplete after a seizure while driving and slamming the gas pedal. I hit a telephone pole at 80mph, yet somehow survived, by the grace of God. At first I couldn’t move anything but my head, but was determined to recover. Gradually I regained movement in all my extremities, and I can now walk without a cane. As I heal, the spasms seem to be getting worse as more nerves heal and reconnect. Anytime I first begin to stretch muscles after sitting/sleeping my arms and legs flex extremely hard for a few seconds. Your article has explained why this is happening to me, and I will use the methods you have given. I am currently on 8 meds to help clonus, nerve pain and side effects of other medications. How did you wean yourself off your medications safely?

  5. I suffer from sci incomplete with right leg spasticity , I can barely walk. May I ask what medications you are on? I am trying Botox in my leg in the next couple weeks .

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