Performing any medical procedure on your child can be stressful for all concerned. Swapping out your child's g-tube for a replacement is no exception.

We hadn’t even made it to the Target toy section when he laughed and cupped his hands together to sign “more.” He was looking at an ad of a boy in a walker.

Gloria G. is from California, and was one of forty finalists chosen out of the over 1,000 entries to our “What Advice Would You Give to a Fellow Caregiver?” Contest. You can find our grand prize and runner up winners here. What advice would you give a fellow caregiver? Advice for soothing a crying medically fragile… Continue reading Caregiver Contest Finalist Gloria: Soothing Medically-Fragile Children

A special needs mom can feel invisible and exhausted -- making a special day set aside to appreciate her especially meaningful.

This taps into the fear of many caregiving parents: what if something happens to me without time to prepare? I'm finding ways to share the responsibility.

Special needs parents are perhaps the best at feeling guilt when we miss a milestone moment for our child. But it doesn't have to be that way.

If the new disability emoji is the modern world’s equivalent to hieroglyphics, then I'm ready to see my son’s life adequately expressed.

More genetic testing? No thanks, I said. We did not need new paths to wander down. We needed to help our son navigate the one he was already on.

Recognizing OT Awareness Month, for the OTs that helped us adapt to our son with Down syndrome and most importantly, helped him adapt to the world.

If having a medically complex child has taught me anything, it's that outside the box parenting makes everyday life better for us all.