I am not the best at going to the doctor. I’m great about it with my kids. If there is vomiting, a high fever, discharge of any color, then we are there with insurance card in hand and masks on. But when it comes to me, let’s just say I’m more…wait and see. There is… Continue reading When the Caregiver Needs Medical Care

You’ve noticed a few things about your child’s reading and writing skills. At your last parent-teacher conference, your child’s teacher may have recognized that your child is struggling with reading and writing. Your child may be making progress, but is still not reading or writing at grade level. Slowly, over the course of the school… Continue reading Is My Child Dyslexic?

The term “medical complexity” is an umbrella term used to describe a wide range of medical conditions that present unique challenges and require special care on an ongoing basis. Medically complex conditions are usually rare illnesses that are functionally limiting and are sometimes life-threatening. Children with medical complexity (CMC) have multiple significant chronic health problems,… Continue reading Children with Medical Complexity

Cystic fibrosis affects the cells that produce mucus, sweat, and digestive juices. These secreted fluids are normally thin and slippery, but with CF, they become sticky and thick. This causes tubes, ducts, and passageways to 'plug up'. This most commonly affects the lungs and pancreas

The Big Move My son Charlie just turned twelve, which is amazing and wonderful! It’s also when we hit the runway at the end of our elementary school journey and board a flight to the new destination of middle school. That season of life takes up residency in our minds for a reason. It is… Continue reading How to Smoothly Transition from Elementary to Middle School

Create sensory-friendly spaces that are more comfortable and welcoming for people with autism.

We’ve been traveling a great deal recently in comparison to the almost zero travel we did during the pandemic. We’re getting out! And now that springtime is nearing, the endless wide open schedule of summer is calling us. Every July we fly to Colorado. We drove once and once was enough. I will never get… Continue reading Which Pilot Are You?

If your child is unable to meet their nutritional needs by mouth, a feeding tube provides a way to obtain life-sustaining nutrients. This method of “eating” bypasses the mouth and esophagus and delivers nutrition directly into the stomach or small intestine. Tube feeding is a tool that allows your child to thrive. It’s common and… Continue reading Adjusting to Tube Feeding Your Child At Home

The term “PTSD” gets thrown around a lot these days in the same flippant way that people say they’re OCD when they straighten a blanket on the couch.

Valentine’s Day in elementary school was epic. You decorated your container (mine was a Keds shoebox, because, hello, it was the 80s) in construction paper and glitter stickers. You went to Walmart or Target (because there was no Amazon) and selected the pack of cards to give your class. Then, on the big day, you… Continue reading A Different Kind of Valentine’s Day Love